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Friday, November 16, 2012

Leah's 1st Shunt Revision


We are currently in the hospital for Leah's first shunt revision.  Yesterday daycare called me right around lunchtime and told me that she had thrown up all her lunch, like everything, more than just a little spit up.  She had also had a few throw-ups on Saturday night and again Wednesday night, coupled with some extra fussiness, and I knew a call to Dr. Marker was in order.  He didn't hesitate to have us bring her her in.  We went to Children's for a CT-scan first and then to see Dr. Marker, who told us that her scans did show increased fluid in her ventricles and that we'd be admitted right away.  So then we turned around and went back to the hospital, which is where we've been since yesterday afternoon.  Dr. Marker didn't think it was such a good idea for us to run home to pack a bag, and I've been feeling a little unprepared for this surgery.  Thankfully it's not an emergency revision, so we've kind of been hanging in limbo waiting to find out what time surgery will be.

Last night was a bit rough.  1-year old Leah is a little more difficult than 3-week old Leah.  She's aware of Mama and Daddy not being around, so one of us has to be in her room with her.  And she can't easily sleep through all the beeping and dinging and people in the hallway and random hospital noises, so neither of us got really good sleep last night.  It's ok, I was prepared for that.  Today we've been just hanging out in her room waiting to find out what time we're doing surgery.  It's changed a few times, this morning we thought maybe 11:00, then 3:00, at one point they thought it would maybe be as late as 7:00.  

I just took Leah down to Radiology for a shunt series, which looks at the shunt tubing to see if maybe the tube is kinked or if it's plugged somewhere else.  This will help Dr. Nagib see where the problem is and better determine how to fix it.  

I'll post updates later today with how surgery went.  For now, she's in good spirits and playing with some of the toys we have for her.  Thank you for all the prayers and support... keep it coming!!

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