Today we went to the annual SB Walk-Run-Roll. It was at a really nice park and the weather turned out to be ok. There was a good chance of rain this morning but it held off and we were able to be outside to enjoy the walk. It was also nice to see some of our SB friends that we hadn't seen in a while and to meet some new people. We were especially excited to meet a family whose 2-year old was rolling around in a home-made wheelchair fashioned out of the bumbo seat. It was sitting on a big cutting board and had wheels, and they told us they made it to model the Zip-Zac wheelchair.
It got us talking about making or getting something like this for Leah. Just in the last week or so, she's been showing signs of wanting to be more mobile. We know that a normal 9-month old would likely be crawling right now. We were having dinner with neighbors who have an 11-month old and he was standing and taking a few steps on his own. It makes us want to start pushing her a little more to give her some independence. It's a fine balance between getting her to be mobile in a chair and getting her motivated to stand and walk on her own. I'm hopeful she'll get into a stander and braces and walk; but I also don't want to hold her back from being mobile.
It was a really fun morning being with the SB community. I loved watching how spunky these kids are and also looking at all their gear. Ty especially likes seeing what kind of gadgets they have. But it also makes me realize how fortunate we are with Leah's condition. There were a few kids who were on oxygen or had tracheal tubes. Others have had several shunt revisions, surgeries to correct club feet, to loosen leg joints, or more serious surgeries. We are so blessed!
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