We need your help! Recently I heard about a study that is looking to identify genetic factors that influence Spina Bifida. I filled out a quick, easy and confidential online survey and then provided a saliva sample from both myself and Leah. This project also needs moms who have babies without Spina Bifida. If you are willing and able to help, please click on this link!
I’m hopeful that someday a new mom will never get the heartbreaking news about her baby. I’m even more hopeful that someday there will be ways to reverse some of the effects of Spina Bifida. Maybe Leah will be able to walk all on her own! Maybe she won’t ever have to think about a shunt revision! I can only dream.
I couldn't register as a control mother but I will spread this to my friends and family and ask that they also spread it. I know that our scientific/medical aptitude in this day and age makes us very very capable of helping out people with an array of genetic birth defects. It's up to us to help people to understand what such research is actually about so that people who don't understand are given an opportunity to open their minds.
ReplyDeleteCord Blood and Tissue banking are steps in the right direction. But for a mother like me who is "ineligible" to do that, my children (and many others) may rely on other people's "healthy" genetics.
I'll spread the survey and pray really hard that people are able to break through with a lot of advances for Leah and all others whose lives can be improved and made simpler with such research!